[Most important update: a big old full statement and apology from the PGP here]
[Update: someone from PGP has commented to point out that this is PGP UK only and the international ones are run separately]
Last night the Personal Genome Project (PGP UK) sent an email out to everyone who’d registered an interest in taking part. 2 hours later one volunteer replied to the PGP UK with a query about the booking form. Unfortunately for the UCL-administered mailing list, the thousands of people that received the first email also received the second one.
6 minutes later someone without a hint of irony emailed:
“Shit. Does this mean that everyone who was emailed that initial Personal Genome Project email will get copied into all ‘Reply All’ responses because they’re a part of the pgp-uk-list distribution? This is going to be annoying”
We all knew what was coming, we were on an inexorable slide toward the predictable. Just before it got underway one wag sent an email pointing out that, since this was a project asking for our genetic information:
“I hope none of you have privacy concerns :-D”
Before the inevitable, the perennial and oh-so-futile:
As any self respecting student of Imperial College knows, such a hilariously stupid email to a list of tens of thousands of people can result in only one thing: Within minutes:
It quickly went wild. Lots of people immediately saw the funny side of things, with an early contributor appreciating how the evening would turn out early on:
“Bro’s, think of the HYPE. we’ve got an email and a dream. Random man emailed us, working some hope. Guys, let’s get real. HE’S GOT A HOPE AND A DREAM. THE HYPE TRAIN IS REAL!!!”
Some people used it for important public service announcements
“Just been to see Godzilla. Don’t bother folks. “
My favourite was a guy sent a “YoU MuSt sEnD tHiS EmAiL To 5 pEoPlE oR eLsE yOu WiLl dIe” chain email that he must’ve been saving from a 00’s hotmail account just for this occasion.
Now unfortunately for people who don’t read things before they start adding comments, the email addresses of the individuals on the list weren’t compromised.
This was made apparent by the third guy who emailed the whole group who pointed out that provided you didn’t email the whole group, your email would be safe and sound. This made subsequent complaint emails such as this one all the funnier.
M’kay so you’re annoyed at a breach of data so you publicly put your email address out on this list despite repeated emails telling you that your email was safe, also you let us know what mail client you’re using and also YOU USE YAHOO FOR CRYING OUT LOUD! Don’t bring your dear mother into this, you’re pretty terrible yourself.
Anyway, this being late on a Saturday evening and everyone sort of getting excited from their phones buzzing constantly in their pockets, this started to happen: which was popular: (these were all guys btw, and some of them had like “[husband]and[wife]@family.com emails which was lol)
There was also a very popular “what’s your favourite movie” thread that opened up, which was dominated by Empire Strikes Back, Starship Troopers, Groundhog Day and a discussion as to whether the film or the book of Perfume was better.
Unfortunately some fascist had to put a bit of a downer on the thread Obviously it’s problematic and worrying that a person willing to make a jokes along these lines wants to get involved in genetics research. I’ve said it before and I’ll say it again, genome science really needs to strive to avoid neo-eugenics taking over and people like this should be excluded.
The thread bounced around for a bit longer, in all 141 emails were sent in 2 hours around midnight before the list got shut down towards 3 am by some poor, poor sleep deprived sysadmin somewhere at UCL.
I’ll update if/when we get an apology. UPDATE:
This is obviously severely problematic for the Personal Genome Project because as many people have been saying it’s going to be difficult to guarantee the complete anonymity of your genome if you go along with the project. Now most people were aware of this when they signed up (and PGP UK went to great lengths to tell you this when you did sign up) but frankly childish errors on email-list privileges look like research-subject privacy is the lowest possible priority for the project. Lots of people decided to tell the email list their intention to pull out the project now and one grumpy old fart started sounding off about lawyers.
The effectiveness of PGP’s research relies on having a tens of thousands of subjects, and now most of the ones they’ve already recruited are pissed off and distrustful.
I was delighted to see some of my friends jump into the email-fray, and to conclude I’ll leave you with the wise words of my dear friend Rob, who’s currently writing up his PhD thesis and thus very bored: